When people talked about the promise of
electronic medical records, Santa Barbara County usually came up as
a role model. In 1999, a nonprofit was created to connect hospitals
and doctors' offices in the California region using interoperable
e-records to share patient data across practices, with the goal of
improving care and cutting costs.
The effort launched to national prominence Dr. David Brailer, a
physician and former CEO of CareScience, a health care
quality-measurement software provider that was the prime contractor
of the project. Brailer went on in 2004 to spend two years as the
first national health IT coordinator, leading the charge for
electronic medical records, or EMRs. Hundreds of health care execs
studied the exchange with an eye on adopting its approach.
In December, however, the Santa Barbara County Care Data
Exchange quietly died. A $10 million grant ran out, and the health
care community didn't see enough value to keep it going. There are
still plenty of doctors using e-records in the area, but the dream
of sharing data across practices, easily following patients where
they're treated, has faded.
Santa Barbara serves as a reality check on the U.S. health care
system's slow progress toward a real EMR network. The diagnosis:
It's worse than you think.
Despite several years of concerted
national effort, including President Bush's rallying cry in 2004 to
get most Americans on e-health records by 2014, the use of digital
records is at a precarious place. Just 10% of doctors' offices use
them. And while hospitals are expanding their use, the most
difficult work--the exchange of data among health care providers,
especially with rivals--has barely begun. Technology itself has
caused problems, such as a system outage last year of a medical
records network run by health care company Kaiser Permanente. There
are legal questions, privacy issues, and competitive pressures
surrounding the technology, as well as concerns about return on
investment. And data-sharing practices have yet to be widely tested
in the real world.
It's not hopeless, and a number of ambitious projects for
sharing health data show signs of progress. There's the occasional
clear success, like a long-running Indiana data exchange. There's
also growing interest among big employers to give personal health
records to their employees, though it's not clear how those private
efforts will mesh with the efforts of regional health information
organizations, known as RHIOs. Still, failures like Santa Barbara's
make it harder to build the trust and financial support needed to
make regional data sharing work.
"I feel the spotlight is on us," says Micky Tripathi, CEO of
Massachusetts eHealth Collaborative. Backed by $50 million from
Blue Cross Blue Shield of Massachusetts, the collaborative is part
of a promising RHIO effort in the Boston area. It's on pace to have
the majority of doctors in a three-community pilot area on
e-records next month, though Tripathi worries such efforts won't
spread to smaller medical offices beyond the pilot, since there
aren't financial incentives for those practices to invest. If the
Massachusetts effort falters, with its combination of money,
top-tier health care, and a tech-savvy population, it'll set the
entire industry back. Says Tripathi, "It was said to me by someone
from the top national level--with a smile, but he wasn't
kidding--'Don't screw this up. It sets a tone.'"
There's a troubling lack of urgency in much of the industry
toward EMRs and data sharing, despite the lives being lost to
mistakes that IT-enabled health care might help prevent and the
potential for cost savings. We all have a stake, as users of the
health care system. Companies want more progress because they're
feeling the pain of rising health care costs for employees, and
they believe in IT's role in lowering that--just as they've applied
tech to improve processes at their own companies. Anyone who's
pushed tech-driven transformation can understand why it's
difficult.
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